I'm trying to stay grateful that Nicole will start receiving Medicaid associated with her SSI on January 1st but honestly, I am so confused after calling Medicaid options.
In some ways I just want to stay with KidCare because at least I have jumped through the hoops and know what I have to do but I know for Nicole's future this is the best. Nicole at this moment has straight medicaid but I will have to pick a plan for her which I will do but until this time I have to call the labs, the durable medical equipment company and the specialty pharmacy (these are the most important and recur on a monthly basis) to see if they take straight medicaid and then what medical plans they take so I can stay with them without having to switch again. I will go to the website she gave me that is suppose to have the list of plans.
It really scares me... I am in tears with frustration and confusion regarding all this and I can't imagine how Nicole will be able to deal with this in Sept. when she turns 18. I get a lot of criticism from my family that Nicole needs to get use to doing all of this herself which I do agree but I also know she isn't ready for it maybe some are but not her. I spend so much time handling medical issues for her it is my part time and sometimes full time job. Nicole will be a senior when she turns 18 and doesn't have the time to do this. I truly believe that I need to get power of attorney so I can have permission to talk to the medical people on her behalf. I need the strength and guidance to be able to do this without worrying what others think even though they feel I am controlling Nicole's life.
I just want to scream when will I get a break? I get a couple of days off with no medical issues and then I am right back at it again. It seems to take over my whole life and I find it hard to focus on other areas of my life like cleaning my house.
I know that God will give me the strength but I just don't feel it right now.